Adalee has been suffering from migraines for 2 yrs now. If you want the entire story of her migraines and the different routes we have taken you can read them (in detail) at the bottom of this post.
During these 2 yrs of researching and diet change and frustration I discovered something:
Everyone has an answer.
Well, they sure think they do.
And let me just preface my rant by saying that I
know that
most people come from a sincere place of love and a desire to help you "figure it out". I know
My mother in law really wanted Adalee to see a chiropractor, because she insisted that a misalignment in her neck or misshapen skull was the cause. Turns out that the neurologist agrees with what I suspected, that these types of migraines would not benefit from chiropractic care. He also completely disagrees with children under the age of 5 having their, still very weak and loose, joints/tendons manipulated. I am not opposed to her seeing a chiropractor when she is older, because I know of many adults who have benefited from it. As of right now it's not the route we are going to take.
My sister insisted that I get an MRI, because what if, God forbid, it's a brain tumor. We had the MRI and it was completely normal. In fact, the neurologist said that if he had seen her prior to the MRI he would not have even ordered one.
People have insisted that it's
sinuses! allergies! stress! food! (even after we did the diet they insisted) the list goes on...and on...and on. Where do people get the audacity to think that their expertise not only surpasses yours, but also that of the specialists you have seen? It is quite arrogant.
To those people that may read this and feel that I'm talking about you, let me just say, if you
suggested something to me I am not talking about you. I love knowledge and hearing other's opinions, and I am grateful for the different suggestions that have been given to us.
BUT...it is beyond irritating when you tell someone the route you are choosing to take in terms of health care for your child, and you tell them exactly why you feel that way, and you also tell them the doctors that support that decision... and they still feel that they somehow have the right and expertise to tell you what you
really should do instead.
OR when someone suggests something. And you explain why you believe that is not the cause or solution, and a month later they suggest it again...and again...and every time you see them. Thank you?
It is flat out disrespectful. I'm sorry, but there is no other word for it. It is not helpful. Nor supportive. Nor loving. It sends the message "I heard what you said, but I really don't think you know what you're talking about, so listen to me again" So, yes, if you have done this I am referring to you.
And I know that this is very cowardly of me; to blog about this and not directly say it to those who have offended me. But it's a first step. If I can collect my thoughts in writing it helps me later in confrontation. I am a writer, not a speaker. It's hard for me to collect my emotions and thoughts in the moment and say what I want to say. I need to breathe, think and regroup, so that I don't lash out on people.
I realize that there are so many different approaches to health/medical care and people have such strong opinions. And it took me a very long time (it took having a child of my own) to realize that there's not one right way of doing things. God may lead some families the natural route and some to modern science and we can not judge each other's choices.
So, please, if you are a parent and are reading this, do not assume that your way is the only way. We all know the feeling of being judged for our parenting choices and we know how unfair and hurtful it is, so why do we turn around and do it to others? If you want to help a parent struggling with trying to find a medical solution, do not give advice out of arrogance and assumption.
Listen to them. Trust what they tell you. Pray for them
For those who have done that for me, I am so so grateful. It means the world. Thaaaank you
Adalee's Migraine Timeline:
Adalee has had terrible migraines for 2 years now. They only happen once a month, but when they do they are so severe that she vomits repeatedly, and is unable to walk or even hold her head up to take a drink of water. Her face gets super pale and her eyes are so sunken in and dark that she literally looks like death. The migraine will last anywhere from 24 hrs to 3 days. And then her body is so depleted of energy from the migraine that she has is weak for a few days after the migraine subsides.
It took us an entire year before we discovered that it was migraines. Because when a 2 yr old vomits and acts sick, you just assume she caught a bug. When we finally noticed that there was a pattern, and she was able to tell us it was her head, we had her tested for food allergies. We also had extensive blood work done. Blood tests came back clear. Food allergy tests showed a very mild sensitivity to dairy, beef, gluten and eggs. Even though it was so mild that she shouldn't even have a reaction, we decided to take her off of everything,
case that was the reason for the migraines.
Do you have
any idea how hard it is to feed a 3 yr old no dairy, eggs or gluten?
So we did that for 1 yr. No changes. Well, there was a slight decrease in the intensity in migraines, but I believe that was because of the fact that we actually knew they were migraines finally, and we were treating them as such (i.e. ib profen, placing her in a dark quiet room, wearing sunglasses while outside, etc...)
Right before her 4th birthday we took her off the crazy diet. Also during this time, we had been doing as much research as we could on migraines and we stumbled across "Cyclic Vomiting Syndrome"
I was so thrilled when I read about it, because it sound very much like what was happening with her. We brought it to her pediatrician's attention and she agreed that Adalee very likely could have that.
Well, just assuming that maybe she has this cyclic vomiting thing that
I (not the pediatrician) discovered and just treating it as such without really knowing, was not satisfactory for me. So I went to another pediatrician for a second opinion and he ordered the brain MRI (the 5 min. mini MRI, so she wouldn't have to be still for the whole 45 min)
Thank God that came back clear! I was a complete mess for the 2 days while waiting for the results.
We were then referred to a neurologist to see if he wanted to order any further testing.
We saw him 2 days ago and he felt that although her migraines last longer than the norm in children her age, he did not find it so abnormal that he wanted further testing. He suggested we do preventative treatment of Magnesium and Butter bur (all natural, which I love) and also prescribed a medication for abortive treatment. We felt that he really listened to us and knows what he's talking about. And although the thought of giving my 4 yr old medication does not thrill me in the least, I trust that he knows better than I do, and if it can help my daughter we might as well give it a go.
Here's to 2012 and finding a solution for my sweet girl!